Let’s Be Honest, It’s NOT Easy!

It's Not Easy - Type 1 DiabetesYou know how every New Year most of us have New Year’s Resolutions to make healthy lifestyle changes but then after about six weeks our enthusiasm begins to dissipate because it’s just too hard? Well, let’s think about this for a minute…

What if you are diagnosed with a life-threatening disease like Type 1 Diabetes, then what? Do you think you can just stop carb counting and taking Insulin because it gets too hard? OH HECK NO!! It is DO or DIE and that is the bottom line.

Then why, for the most part, do we pretend that managing Type 1 Diabetes or any type of diabetes for that matter is not a big deal? Well guess what, IT IS A BIG DEAL! It’s a lot of work. 24/7, 365 days a year with no breaks and no vacations doing a job that quite honestly, you didn’t want.

It seems we all ask, “why is it so hard to raise awareness to Type 1 Diabetes?” For one, children and adults who have Type 1 Diabetes look healthy on the outside so the public assumes that they are fine, and two, we make it look easy, I’m guilty as well. Of course there are many more factors, but I’d have to say, these two, in my opinion, are the main ones.

Most of us like to share success stories or stories of persevering when it comes to our children, but how often do we share the real life moments when Type 1 Diabetes isn’t so easy? For example, a low blood sugar after exercise and your child is pale, lethargic, shaking and you feel scared for them or an ER visit due to illness and you’re not sure the doctor on call knows enough about Type 1 Diabetes? We’ve all had those moments that make you feel helpless as a parent.

Maybe for those of us who are comfortable sharing, we start sharing the real life moments, the moments behind closed doors that no one sees except your own family. Maybe this will help the public understand that although children and adults with T1D look healthy on the outside, their insides tells a different story. We need a cure and unless the public truly understands just what Type 1 Diabetes is, the funding for the much needed cure may not happen as soon as we would hope for. After all, why would the public fund for a cure that they “think” can be cured by a proper diet and exercise?

It’s time we expose this “Invisible Disease” for what it really is. A chronic, life-threatening autoimmune disease which affects every aspect of life.

#RealLifeT1D #WeNeedaCure #ItsNotThatEasyT1D #NoMoreHiding

Deb pic

Written By: Debbie George ~ June 18,2016

Share This:

2 thoughts on “Let’s Be Honest, It’s NOT Easy!

  1. I am a local mother and my 11 year old son was recently diagnosed with type 1 (4-21-16). I am interested in helping you educate the public. What can I do? I was very fortunate, as when my son was diagnosed I knew a lot about the disease already (I have a BS in a health science). But i am only beginning to learn the day and night till this takes on a family. And surprised at how many people don’t really understand the difference between type 1 and type 2 diabetes. I would love to volunteer time, if it’s needed. Please let me know

    • Hi Donna,

      Thank you for your post. I am so sorry to hear that your son is was recently diagnosed. Although your lives will be forever changed and require much more monitoring, I promise it will get easier and you will develop a new “normal”. It is truly crazy how little people know about type 1 diabetes and sad how TV, Movies and Commercials really only add to the confusion between type 1 and type 2 diabetes. However, change is definitely coming 🙂 There are so many awareness and advocacy groups coming together right now that I think in the next year we will be able to raise awareness to T1D. We can always use help and support!! We have a few local events coming up, if you are able to attend any of them it would be great to meet and talk with you in person. Feel free to check out our Facebook Page, we will be adding our events there. My partner and I look forward to meeting and talking with you!! Please email us if you have any questions/struggles as you navigate your day to day.

Leave a comment

Your email address will not be published. Required fields are marked *