Thank you General Richard Roth for authoring Senate Resolution 63 to help raise awareness on Type 1 diabetes. It was a privilege and an honor to be on the senate floor when this life saving measure was passed unanimously 38-0. We’d also like to thank Keith Darice Oxendine who started this movement with Reegan’s Rule to honor their daughter Reegan who passed away at 16 months from un-diagnosed Type 1 diabetes. Thank you to everyone who has helped and supported us along this journey!
It all started with a Call To Action By EASE T1D…
EASE T1D started a petition in May of 2015 which will encourage Physician’s, PA’s, and Nurses to educate parents on the signs and symptoms of Type 1 Diabetes as well as check blood glucose levels of children/adults who present flu-like symptoms in an effort to prevent a misdiagnosis and save lives. This legislation is modeled after Reegan’s Rule of North Carolina.
Just one day’s delay of a Type 1 Diabetes diagnosis can lead to coma, brain damage and death. We have had two recent deaths in the month of July, 2015. A beautiful 5 year old girl from Utah who was undiagnosed several times resulting in brain damage and a 4-1/2 month hospital stay; she sadly passed away July 11th. You can find her story on Facebook under “Kisses4Kycie.” The other child who passed away was David, a little 4 year old boy from Michigan who passed away 4 days after being misdiagnosed with flu symptoms.
A misdiagnosis happens all the time and something MUST BE DONE! This is why EASE T1D is pushing for legislation similar to Reegan’s Rule of North Carolina. We have already met with Senator Richard Roth and are working with him with the hope of getting this legislation authored.
Reegan’s Rule was started in North Carolina by a mother whose 16 month old baby girl, Reegan Oxendine, passed away from undiagnosed type 1 diabetes. Little Reegan had been misdiagnosed several times over a 3 month period resulting in her death. Reegan’s mom, Darice Oxendine, created legislation which encourages parent education on Type 1 Diabetes during well-child care visits from birth to age 5 years old. This legislation was signed into North Carolina Law on October 20th, 2015 and is the first of its kind. We congratulate the Oxendine family for their perseverance to push this legislation into becoming law and for helping others so that they may not have to feel the pain and anguish when a child passes away.
Advocacy efforts for similar legislation are happening all around the world. This past November, 2015, House Resolution No. 569 passed in Pennsylvania due to the efforts of Debbie Healy and her State Representative, Ryan MacKenzie. The Resolution encourages physicians to educate and discuss the warning signs and symptoms of Type 1 Diabetes with parents or guardians.
It is time our voices are heard…
NO PARENT SHOULD BURY THEIR CHILD!!